Royal College of Paediatricians

“We are aware that increased body temperature can be a trigger for seizures in Dravet's syndrome and that these seizures may be of a complex nature (lasting longer than 15 minutes or occurring again within 24hr”

“We have taken an action to make all the medical directors and lead paramedics of UK ambulance services aware of the circumstances of [the deceased]' death and have asked them to review the JRCALC guidance and any local pathways or guidance in relation to decisions around conveying children after seizures.”

“We believe that our guideline on epilepsies: diagnosis and management [CG137], which was in place at the time of [the deceased]' death, is directly relevant to this case. The guideline covered diagnosing, treating and managing epilepsy and seizures in children, young people and adults in primary and secondary care and made recommendations on what should happen following a first seizure (section 1.4), diagnosis (section 1.5) and investigations (sections 1.6). CG137 has since been replaced by our guideline”

“the RCPCH is unable to comment on the specifics of the case and the Pennine Acute Hospitals NHS Trust has been asked to respond directly on local communication, record keeping and policies and procedures.”

“we will keep our recommendations under review, pending new evidence emerging.”