Owen Hinds
7 May 2021 · Coroner Laurinder Bower · Nottingham City and Nottinghamshire
The coroner's concerns
1. lack of specialist dietetic support for ASD patients with ARFID
“There is no specialist service commissioned to provide ASD patients with long term dietetic support for ARFID symptoms, despite the increasingly prevalence of ARFID diagnosis”
2. NCAS providing unsustainable ARFID support
“The Nottingham City Autism Service (NCAS) went above and beyond their remit in co- ordinating support from his GP. The service is commissioned to provide diagnostic and short term post-diagnostic intervention, yet they worked with [the deceased] (as they do with many other patients) for years in order to bridge the gap in service provision. However, they could not provide the sustained ARFID support that [the deceased] required”
3. ineligibility for dietetic and learning disability support
“[the deceased] did not meet the criteria for support from the Eating Disorder Service or Dietetic Services (on account of his diet concerns being linked to his ASD) or Primary Care Learning Disability Nurse (as [the deceased] did not have an intellectual impairment)”